First of all big apologies. I just looked back at my last post and its been a couple of weeks………my bad!
I just looked again for reminders of what I’ve been up to and it’s 3 weeks!! Shit!!
Well I 9th-15th I managed to go to the gym 3 times. I was feeling really motivated and I was in control of my energy levels. Which will probably seem strange to some of you reading this but sometimes the fatigue draws me into a false sense of energy. Like I’ve said before it’s so difficult to explain if you haven’t experienced it. Below is Headway’s analogy:-
Fatigue is experienced by everyone at some point after a period of physical or mental activity and is a signal telling us to take a break. ‘Normal’ fatigue is time-limited and alleviated by rest, whereas ‘pathological’ fatigue, such as that experienced following brain injury, may be present most of the time. It may not improve with rest and is likely to significantly impact on people being able to do the activities they want to do.
If you would like to read more here is the link https://www.headway.org.uk/media/3995/managing-fatigue-e-booklet.pdf
I also stuck post it notes all over the cupboard doors and light switches saying Right hand only. To remind myself obviously that and cupboard that was opened or any light switch had to be operated with my right hand. This is because my brain wants to automatically use my left coz it’s quicker, takes less time, concentration & effort. That is a battle I constantly have. The funniest thing about sticking up the post it notes was literally 5 mins later I was making a cup of tea and opened the fridge door with my left. Even though there is a post it not right above the handle!!
Putting post it notes up has made me a lot more aware of my right hand. In the shower now I try to was as much of my body as I can with my right hand now. When reading I try to turn pages using my right hand. That is a lot harder as I end up getting several pages at a time………I suppose it’s a quicker way to read a book?
16th-22nd this was another busy week. Not really dissimilar to the previous week really. Going to the gym and hand therapy getting my hand more involved in day to day things as much as possible.
I had my first counselling session with my new therapist who Headway Herts got me in contact with. Chris is fantastic. She comes to my flat. She has worked with many people with brain injuries so she has a good understanding unlike that wellbeing woman. The session was a highly emotional rollercoaster for me. Plenty of tears. I was exhausted after she left. Fatigue was at an all time high, I just laid on the sofa after she left. In fact I was in bed early that night. I couldn’t string sentences together and couldn’t find words I wanted so I took myself to bed to rest.
The Friday I had Physio with James. It was has work……….in fact a classed it as one of my gym sessions for the week. James had me standing in front of a wall with a small crate with foam balls in. To start he told me to reach down pick up one of the balls in my right hand then reach up and touch the ball on the wall as high as I could. Once I had he made a paper target that he stuck the wall and every ball I picked up had to hit that target before putting in the other basket. 10 balls each time with a minute break in between. Soooooo I got to the end in round 2 and this time instead of a 1 minute break I had to go straight over to bench and pick up marbles with my finger and thumb the finger tips. There were 9 marbles that I had to get from one side of the board to the other. 1st attempt took ages……..I’d say 3+ minutes. As soon as I had finished it was straight back to the balls. Then back to the marbles which I was getting quicker at. Again back to the balls. This was becoming more difficult as my arm was tiring and I was struggling to get the ball to the target. Again back to the marbles and this time it was even quicker and my grip of the marbles was really good. The session finished with one more round with the foam balls. By this point it was very difficult. My arm was knackered. So now that is the way we are working. Because the flexors (I think I’ve got this the right way round) in my forearm are tight it makes it harder for me to to finer movements with my hands, but…………by tiring my arm and the flexors there is less resistance so the finer movements are easier to do. So that’s the route we are taking now.
Right this is quite a big post so I’ll leave it there for today and I’ll finish it and get up to date tomorrow.
Laters people 💋