It’s July

Hey folks,

It’s been an interesting week. The week started pretty productively,

Gym✔️ Hand Therapy✔️ Blog back up and running✔️ Blogs Instagram Acc✔️

Then it all came to a abrupt stop on Weds when I had my CBT phone appointment. I had ask the have someone who had knowledge of brain injury. In our first couple of appointments she seemed as if she did but……….clearly it was false sense of security I was being lured into. We were talking about following the plan not the mood to make sure I get things done. Ok I can do that. So we are planning activities for the week. For this the Therapist will be T (saves typing 🙂) So the conversation goes like this………

T: so what the first tasks you are going do this week and on what day?

Me: hand therapy everyday

T: ok. Everyday though really? What time of day?

Me: yes everyday I need do do 400 reps everyday. It has to be in the morning as it’s when I function best.

T: ok. What are we going to add next?

Me: the gym.

T: ok when are you going to do that?

Me: again in the morning.

T: ok so what about in the afternoon?

Me: a nap.

T: ok is that a good idea? Is there anything else you could be doing? Remembering to follow the plan not the mood.

Me: yes I’ll need to have some rest as the concentration it takes tires my brain.

T: remember we are following the plan not the mood. It’s easy to give in to our brain not wanting to do something.

(Thinking in my head………Do you think I don’t know this! I’m a ***ing expert in it! For the last 3years have had constant arguments with my brain over doing tasks using my right hand instead my left. With my brain being like……..”this is too hard, why are we doing this? Just do it with your left it will be easier and quicker! I’m bored! I’m not playing!)

Me: yes I know but since my brain injury I get tired very easily especially when doing the hand therapy. (staring to get upset) It’s takes a lot of concentration as I’m trying to get my brain and my hand to communicate again.

T: I understand

Me: no! I don’t think you do! I don’t think you understand the battle………Ive got to go. I’m hanging up now

Click! End of conversation.

That killed my mood for the rest of the week really if I’m honest. I’m now trying to get back in touch with my neuropsychologist at Danesbury and also other privately. I’m going to be more through in my search. There are changes in my brain again and I need help understanding them.

Like every human out there my brain is constantly changing, adapting, fixing, growing and deleting (although it does this a lot as the keys to the short term memory department keep getting lost. Or the staff are sleeping on the job)

There is no definite answer to what you can achieve after brain injury. The only definite thing is how far you want to push yourself. In my opinion yes the experts can say this will/won’t/could/should happen but no one in the world knows what your brain can do……………even you.

For me I need the neuropsychologist to help me guide my body and my brain down the same path. Yeah there are going to be times that they don’t want to but instead of getting frustrated and angry I need help in managing it all and recognising triggers.

Well time to sleep. A new month of challenges and results and targets.


TalarMade FS3000 & Me

Hey folks I’ve been having a few tech issues and on an old phone so no photos I’m afraid just words.
​So as you can see with the heading I have an orthotic from TalarMade. By keeping my side of the bargain and my review of the FS3000 after the NeuroExpo the CEO Simon Dickinson kept his side side of the bargain and sent me a FS3000 for my own personal use. 

I received the FS3000 in July and since then I’ve been wearing it everyday. 

I’ll be honest I didn’t think it was doing much until I went out one night without it. I was only popping round to a friends so I was feeling lazy and couldn’t be bothered to put the orthotic on. Well as I started walking down the road I realised the difference it was making. As I walked down the road without it on my foot was dragging through, my toes were scuffing the ground. The hitch in my hip had reduced by half. I was struggling to walk and not fall over. This orthotic had changed so much in such a small amount of time. The speed that I walk at now has improved too. As the FS3000 makes my heal land first and then my toes. 

But the best example of how the FS3000 has helped was this weekend just gone. I was at a festival and I had my orthotic on and was using my mobility scooter. On the Sat the scooter started tripping out so we left it on the viewing platform and I used my feet. WOW!! All day I walked. I wasn’t having to worry about the bumpy uneven ground beneath my feet. I was able to pay more attention to the ****ing idiots who wouldn’t move or just start walking towards me and think that I was going to move. I lost count of how many people I tripped up as I used my walking stick at an angle to give me some space. 

The level of independence is have now has just gone up a level again. 

The FS3000 has changed my quality of life. I’m so thankful for that opportunity to go to the NeuroExpo and meet Simon and the team at TalarMade. Thanks guys. Below is a link to the FS3000.
Don’t get me wrong I still have issues with my foot turning in but not half as bad as it was.

If any company out there thinks that they can improve my walk still then please get in contact with me and I’ll happily give your orthotic/brace a go. 

Laters x

NeuroExpo The World of Saebo 

Another company that I am a big fan of is Saebo. Glyn and the team are great.

I first started using Saebo products while in rehab. The first product I used was the SaeboReach.

This glove was used as my hand was in a clenched fist and this helped straighten out my fingers. If you look back at Danesbury weeks 3 & 4 there’s a picture of me in the flex (I can’t get the photo to copy on to this post). It was great. At the time I thought my hand was always going to be a clenched fist until this product. You can find more info here

The other product I’ve used is the SaeboGlove.

I had a 2week trial of this and this. Similar to the Flex but you have the ability to use finer movements. It’s lighter that the Flex (obviously) and instead of the springs and metal mounts you have rubber tensioners instead. It’s a very comfortable glove to wear. You can find more info here
Another product that I only started using today is the SaeboMas.

I think this is incredible and that’s from one use. I don’t have great strength in my shoulder and as a result when I try to pick up bricks to build a tower after the first couple I loose any grip I have and struggle to reach and place the brick. What the Mas does is take the weight of you are allowing you to focus on the action of reaching up higher and keeping your grip. There is also a Mas Mini that can be used at home. You can find more info here

Also while I was at the NeuroExpo I got to see the SaeboVR in action.

It helps people with physical and cognitive challenges involving daily tasks. It’s amazing to think how far things have come in just the 2years since I had my brain fart. I would have loved to have been able to use that while I was in rehab. Again more info here

SaeboStep (for foot drop)

I got to look at this in greater detail too. Again discreet and simple. This is to help pick your foot up as you walk so that you have a better stride. It’s completely customised to you foot and the angle needed for ground clearance. Brilliant. Perhaps I should try this. More info here

There are more products at Saebo. These are just the ones that I’ve used. They also do:

SaeboStretch, StimMicro, MyoTrac & ReJoyce.

Again all of these products can be found here

Aslo you can find them on Facebook saebouk, Twitter @SaeboUK, and Glyn @saeboukglyn.

If any of the products interest you of you would like more information. Perhaps it might benefit a family member or perhaps your a physio whose patients could benefit then get in contact with them. Like I said before they are very friendly and will answer all of your queries.

Laters 💋


Hey folks

Big big apologies as I haven’t been doing my blog lately but it’s been a bit of a busy time.

I haven’t been in the gym as I damaged my shoulder and then my physio James confirmed it. So I was a bit down with that. But he gave me a load of exercises to do to improve it. Some I can coordinate but some I’m not so good at. I have a session with James again this Thursday so fingers crossed it has improved.

With the help of the CBT I’ve been doing pretty well with health anxiety and have kept it pretty much in control. Which I am pretty pleased with. It has caught me out sometimes but that is o be expected as I’m still learning.

The biggest news I have is that I got to go to the NeuroExpo ( It was held in London at the Excel centre. I was so lucky to go. It was amazing. All the new technology, equipment, orthotics, upper limb, lower limb and so so much more. I could do a long long post but I won’t I’ll break it down into individual post on the things that caught my eye. 

The first NeuroExpo post will be up tomorrow morning.

Until then laters 💋

NeuroExpo17 TalarMade FS3000

Like i said yesterday I was at lucky enough to go to the Neuro convention at the Excel centre in London on 7th June. It was an amazing experience seeing all the new developments in technology that can help people with physical disability to gain more independence. 

One of the stands that I went to, infact spent the biggest amount of time at was a company called Talarmade ( twitter-@talarmade Facebook-TalarMade) Talarmade special in orthotics. And this was what interested me:

Here is a little bit of what the website tells you about it and then I will tell you what how I felt wearing it. 
 The TurboMed FS3000 AFO is a revolutionary new treatment option for drop foot. It’s unique patented design acts as an exoskeleton to the impaired limb and provides the user with unparalleled levels of function without discomfort or rubbing.

The FS3000 is a custom build modular ankle foot orthosis (AFO) made from highly durable thermoplastic (warrantied for 2 years). It attaches to the outside of footwear and quickly and easily interchangeable from shoe to shoe.

Unlike many other AFO’s, the FS3000 does not prevent ankle plantarflexion or limit dorsiflexion, making it easier and much more comfortable for patients to walk and run on slopes, stairs and uneven surfaces.

Right now my review. This is one amazing bit of kit. First of all its so lightweight and that was with it already attached to a trainer. It wasn’t an eyesore to look at but to be fair even if it was I wouldn’t care and I’ll tell you why. 

For 2 years since my aneurysm I’ve been trying to find the best equipment to help me to walk again as I have a drop foot and it also turns in ( I can’t remember the scientific name).

So I have a silicone boot made by the NHS which is moulded to the shape of my foot and keeps my foot in the correct position but it isn’t very flexible, obviously it’s not really meant to be that flexible but when trying to walk up steps it isn’t that easy. 

I’ve used a FES machine to stimulate the nerves in my leg to lift my foot which has worked in the past but it isn’t constant. Even when i draw around the electrodes on my leg so that they are in the same place everyday. When it works it’s great and I feel like I’m walking normally but then the next day it doesn’t and it’s so frustrating. Also with all the wires you can get a bit tangled up.

So we come to the FS3000. Well it’s brilliant. Like I was saying it’s sooooo lightweight. I was talking with Simon (clinical director) and he helped put the trainer on my foot. Well…….the FS3000 is incredibly flexible and still so supportive. Once my foot was in the trainer and the velcro was secured Simon told me to go for a walk around the convention. So I took my stick and off I went. Within minutes I had forgotten that i was wearing it. I wasn’t focused on where I was walking or how my foot was placed. I could look at what was on the other stands and not worry. I was leading with my heel. Walking like I used to. When I went back to the booth I didn’t need to say anything as the big grin on my face said it all. I even walked around without my stick! Here is a little video:

I could feel my hamstring and calf working. I had less stress and tension in my left leg. While standing there and talking I could feel my centre of gravity was back where it should be……….in the centre. I wasn’t leaning to my left I was standing level. In such a small amount of time the FS3000 had changed my walk, posture and energy levels. It’s one amazing bit of equipment. There really isn’t anything else to say about this except if you’re a patient speak to your doctor/physio/orthotist or if you’re in the clinical profession get in touch with Simon and his team (

Laters 💋